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  • Have you ever felt overwhelmed trying to navigate the healthcare system? Families dealing with rare diseases shouldn’t have to bear that burden alone, and it’s time we recognize the urgent need for better coordination in Sweden’s care system!

    Zozan Sewger Kvist, the CEO of Ågrenska, highlights in a recent Q&A how families are struggling with stalled reforms and uneven access to critical care across Europe. This issue is not just about healthcare—it's about families' lives, their struggles, and the support they desperately need. It's frustrating to think that in a world where we have the technology and knowledge, families still face such barriers.

    Let’s rally for change and push for a system that prioritizes every patient’s needs! Who else feels strongly about the need for reform in rare disease care?

    https://www.politico.eu/sponsored-content/families-shouldnt-have-to-coordinate-swedens-rare-disease-care/?utm_source=RSS_Feed&utm_medium=RSS&utm_campaign=RSS_Syndication
    #RareDiseases #HealthcareReform #PatientCare #Sweden
    Have you ever felt overwhelmed trying to navigate the healthcare system? Families dealing with rare diseases shouldn’t have to bear that burden alone, and it’s time we recognize the urgent need for better coordination in Sweden’s care system! Zozan Sewger Kvist, the CEO of Ågrenska, highlights in a recent Q&A how families are struggling with stalled reforms and uneven access to critical care across Europe. This issue is not just about healthcare—it's about families' lives, their struggles, and the support they desperately need. It's frustrating to think that in a world where we have the technology and knowledge, families still face such barriers. Let’s rally for change and push for a system that prioritizes every patient’s needs! Who else feels strongly about the need for reform in rare disease care? https://www.politico.eu/sponsored-content/families-shouldnt-have-to-coordinate-swedens-rare-disease-care/?utm_source=RSS_Feed&utm_medium=RSS&utm_campaign=RSS_Syndication #RareDiseases #HealthcareReform #PatientCare #Sweden
    Q&A: Families shouldn’t have to coordinate Sweden’s rare disease care
    A Q&A with Zozan Sewger Kvist, CEO of rare disease competence center Ågrenska, on stalled reform, uneven access to care in Europe and the limits of regulation.
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